Managing IBS. Problems with GP’s, national guidance and the low FODMAP diet.

(Updated 2017) by Lee Martin MSc RD

Believe it or not, not everyone who has IBS needs to follow the low FODMAP diet! The low FODMAP diet has been such a revelation in the treatment of IBS symptoms that one can forget there are actually many things you can do to help self-manage your IBS symptoms before trying the diet. The low FODMAP diet might have the most robust research data for its effectiveness in IBS but other more simple dietary interventions can also work.

Managing IBS. Problems with GP’s, national guidance and the low FODMAP diet

Indeed a recent randomised controlled trial (OPEN ACCESS) found a diet low in FODMAPs reduces symptoms of irritable bowel syndrome as well as traditional dietary advice (Bohn et al, 2015). This traditional dietary advice was based on the NICE IBS Management Guidelines mentioned later in the article.

Even so, many people will attempt a low FODMAP diet and now the awareness and popularity is increasing both with healthcare professionals and the general public. Awareness is a good thing, however there are many people who when they see their GP about their IBS are being told to try the low FODMAP diet themselves without any additional help. I have seen this in my own clinical practice, I hear about it from friends and other dietitians and I read it on Facebook IBS support groups every week!  This raises many issues but the most important three for me are:

  1. Did this person need to follow a low FODMAP diet in the first place?

As I mention above (and outline below) there are many things you can do before considering a low FODMAP diet. If you see a dietitian they will help determine if any of these other approaches are of value or if the best treatment approach is in fact the low FODMAP diet. Remember most studies find the low FODMAP diet effective in almost 3 out of 4 people (about 60% of people) and it might not be the best treatment option for you. To help you make this choice some useful further information can be gained from the article by Patsy Catsos (an American dietitian) who discusses ‘Signs that a low FODMAP diet is not right for you‘.

  1. Is it really a good idea to attempt a low FODMAP diet without professional help, considering the lack of evidence for this approach and the potential nutritional and health risks that are associated with restricted diets?

The low FODMAP diet has been researched using dietitians delivering the treatment (and completing the research studies) and it is not currently known if a ‘google’ search of FODMAPs or a sheet of paper explaining the low FODMAP diet is as effective as a dietetic treatment. Then there are also nutritional risks from restricting foods you normally consume as you must ensure you replace the missing nutrients appropriately, which a dietitian can advise on.

  1. In the UK guidance on IBS by the National Institute of Health and Care Excellence (formally National Institute of Clinical Excellence) (NICE, 2015) actually advises GP’s to make a referral to a dietitian for support with restricted diets specifically for IBS i.e. the low FODMAP diet.

I am going to focus on point 3 because I don’t believe enough people with IBS are actually aware of the NICE (2015) guidance in place to help with the management of IBS. Considering that many people attempt the low FODMAP diet without dietetic help you would hope that those who actively seek help from their GP would get a referral to a dietitian.

I thought it would be useful to detail the information these guidelines outline on the dietary management of IBS so if you do see your GP you are clear on the current IBS management process. The extract below, in italic, is taken directly from the NICE (2015) full guidance on IBS and as you will see it first discusses the basic dietary advice that should be tried before embarking on a low FODMAP diet.

Exert from NICE IBS Guidelines available here.

Managing IBS. Problems with GP’s, national guidance and the low FODMAP diet

Diet and nutrition should be assessed for people with IBS and the following general advice given:

  • Have regular meals and take time to eat.
  • Avoid missing meals or leaving long gaps between eating.
  • Drink at least eight cups of fluid per day, especially water or other non-caffeinated drinks, for example herbal teas.
  • Restrict tea and coffee to three cups per day.
  • Reduce intake of alcohol and fizzy drinks.
  • It may be helpful to limit intake of high-fibre food (such as wholemeal or high-fibre flour and breads, cereals high in bran, and whole grains such as brown rice).
  • Reduce intake of ‘resistant starch’ (starch that resists digestion in the small intestine and reaches the colon intact), which is often found in processed or re-cooked foods.
  • Limit fresh fruit to three portions per day (a portion should be approximately 80g).
  • People with diarrhoea should avoid sorbitol, an artificial sweetener found in sugar-free sweets (including chewing gum) and drinks, and in some diabetic and slimming products.
  • People with wind and bloating may find it helpful to eat oats (such as oat-based breakfast cereal or porridge) and linseeds (up to one tablespoon per day).

For some additional advice the British Dietetic Association has produced a Food Fact Sheet on IBS that supports recommendations relating to dietary and lifestyle advice for IBS in the NICE guideline on irritable bowel syndrome in adults. I highly recommend taking a look at the resource, a sample of which is shown below.

bda-ibs-food-fact-sheet

The NICE 2015 guidelines then go on to say:

Healthcare professionals should review the fibre intake of people with IBS, adjusting (usually reducing) it while monitoring the effect on symptoms. People with IBS should be discouraged from eating insoluble fibre (for example, bran). If an increase in dietary fibre is advised, it should be soluble fibre such as ispaghula powder or foods high in soluble fibre (for example, oats).

If diet continues to be considered a major factor in a person’s symptoms and they are following general lifestyle/dietary advice, they should be referred to a dietitian for advice and treatment, including single food avoidance and exclusion diets. Such advice should only be given by a dietitian.

As I have underlined above the guidelines specifically mention referral to a dietitian.  Below is the bit about FODMAPs found in the guidelines under further dietary management:

Managing IBS. Problems with GP’s, national guidance and the low FODMAP diet

Further dietary management

If a person’s IBS symptoms persist while following general lifestyle and dietary advice, offer advice on further dietary management. Such advice should:

  • include single food avoidance and exclusion diets (for example, a low FODMAP diet)
  • only be given by a healthcare professional with expertise in dietary management.

The NICE guidelines thankfully advocate dietetic advice for food avoidance and restricted diets such as the low FODMAP diet. Hopefully many people will get access to a dietitian to help them with this treatment. In the UK if your GP has told you to attempt a low FODMAP diet to self-manage your IBS diet but has not referred you to a dietitian then that GP is not following national guidelines (NICE, 2015). If you find this is the case for you then please do remind your GP of the NICE 2015 IBS Management Guidelines and get that referral to a dietitian which you are entitled to and what is recommended in best practice guidelines. Unfortunately this does not always mean you will get a referral to a dietitian.

Certainly at present it seems the main limiting factor for success of a low FODMAP diet is access to a trained and experienced FODMAP dietitian.

It will be very interesting to see more research on the low FODMAP diet that utilises other treatment approaches such as web based applications or other professionals administering low FODMAP advice. Personally I think these non-dietetic based methods will still be effective but will not be as effective as a trained and experienced dietitian.

If you are struggling to access a dietitian an alternative resource I recommend is the charity The IBS Network. I agree with the approach of the IBS Network which encourages people to seek medical help but also self-treat their IBS and provides them with the resources enabling them to do this. See here for information. Thanks to technology there are also options to see a private dietitian via Skype or consultation platforms at less cost than traditional face to face appointments. Have a read of our Consultations page for the options we provide or search the internet for an appropriate professional to support you.

Are you thinking of doing the low FODMAP diet?

You need to make sure the investigations below have all returned negative! Read our information sheet on what to do “Before the low FODMAP diet” for clarification.

Screenshot 2017-04-12 19.49.34


Good news! The first ever book dedicated to reintroducing FODMAPs is now available to purchase on Amazon. The book is titled ‘Re-challenging and Reintroducing FODMAPs – A self-help guide to the entire reintroduction phase of the low FODMAP diet’. Click on the logo for more details.

reintroducingfodmapsLOGO


Want more information on the low FODMAP diet and IBS? Click here or for low FODMAP recipes click here.

We recently travelled around the world and blogged about following a modified low FODMAP diet. See more on our FODMAP travel section.

Skype consultations half price We offer reduced rates for Skype consultations anywhere in the world. For more information and for contacting R&M Dietetic you can enquire here or email info@rmdietetic.com



3 thoughts on “Managing IBS. Problems with GP’s, national guidance and the low FODMAP diet.

  1. I’m a community dietitian and see this week in, week out! Many patients wanting to go straight for Low FODMAP without any firstline advice. Saw a patient today who was so pleased a few small changes had significantly improved her symptoms! Happy patient = Happy dietitian! Enjoy your travels ladies! Love your stuff!

    1. Thanks for that Leigh it’s so nice to get feedback, we are loving travelling! Yes the low FODMAP diet has taken over IBS treatment and you see on the internet it being touted as a ‘cure’ for IBS. Confusing for patients especially as, like you say, sometimes a few small changes can make a big difference.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s